Monday, July 22, 2013

Day 7 and no end in sight!

This SUCKS! Dr. Floreth just came in and let Maddy know that she is in the 20% that needs more pheresis to get rid of the antibodies. As a matter of fact her antibodies are not only still persisting, they have increased! This is really bad news. They will be doing another round of plasma pheresis. Possibly as much as ten days worth. He kept referring to time in weeks instead of days. That was not a good feeling! He also mentioned the possibility of needing more chemo therapy to combat the antibodies. Maddy had a mild reaction of a fever and just plain feeling bad with the chemo last night. The doctor mentioned a more aggressive form of chemo being used if needed.

The plan now is to do the plasma pheresis and check her antibodies every few days until they see clear results. They are working with immunology to make sure they cover all the bases and attack this rejection as aggressively as possible. The pheresis doctor has already come in to get the ball rolling so we don't miss another minute getting started!

He also wants to see greater improvement in lung function before sending her home. The pneumonia is under control and the pneumothorax is completely cleared up. So her persistent low lung functions are a direct result of the rejection.

I guess that's it for now. Hopefully they don't have to make her too much worse in order to get her better. Just being in the hospital is taking its toll on her. She is totally miserable and can't stand the thought of being in here one more day. I think she is feeling like she did before the transplant. It seems hopeless sometimes. But she has always been a fighter so I know she won't let this keep her down! Meanwhile we will be here until this pesky rejection episode is beat down!

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