Day 5

Last plasma pheresis treatment! Two more days in the hospital and Maddy should be able to go home. She is really tired of being in here. Like that's a surprise!

Not much to report over the last two days. I got a text from Maddy Friday morning saying they had done her EEG. Then her BF hung out with her for the day, which gave me a chance to get my laundry done and go to the gym! Last night about 11PM they took Maddy down for her MRI. They have a weird sense of timing at the hospital. But it kind of makes sense. They do all the outpatient MRI's during the day and get in all the emergency ones they need done between those. So when they have a patient in house they just take them down when ever it's convenient.

I got back down here about mid morning and Maddy was napping. We had a nice walk around the hospital. Literally, we went looking for the food trucks that are supposed to be here every day and they were no where to be found! Apparently they have late hours on the weekend and we were too early. We ended up walking the entire perimeter of the hospital. Poor Maddy, she was a bit upset with me after that one! We finally ended up at McDonald's of course. Yuck! But I did get this cute guy for our troubles.

The neurologist came by after we got back and told Maddy that her brain looked beautiful! She compared this MRI to the one they took two years ago right after the seizures and there is no remaining damage. The EEG came back clean too of course. So they are going to taper her off the anti seizure meds over the next few weeks. That's two less medications Maddy has to worry about.

Now we wait for her blood work to come back showing they got rid of the antibodies that were causing the rejection. Make sure the X-ray shows no more signs of pneumonia. There is some kind of treatment they are giving her for the next few days that is a follow up to the pheresis. Maddy couldn't remember what the doctor said it was but it is one of the same things they give people as a follow up to chemo therapy. I'll try to find out from the nurse and post it later. After all that we get out of here! I'm pretty sure Monday will be the day.

Here is a picture of a seagull just because!

 

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