Well that was quite a ride! We finally got out of the hospital and home on Saturday afternoon. Things are getting back to normal and Maddy is very happy to not be stuck in the hospital any longer. She still has a bit of recovering to so but we hope she will be back to her full self on a few weeks.
Follow up will be ongoing for at least a few months. She has an appointment tomorrow morning for blood work and possibly a consult with cardiology but we can't really figure that one out. We will have to double check when we get to the hospital tomorrow to see what all appointments she will be going to that morning. They will be watching her antibody levels carefully and checking them weekly. She will also be getting IVIG monthly.
I can tell the chemo is still taking it out of her because she has been nauseous and tired all day today and yesterday. I'm trying to get her to eat little bits at a time and hoping that will keep her energy up. I'm also hoping the effects of the chemo will be over very soon! It's really beating her up! I am making pot roast for dinner but don't think she will be able to eat much. Oh we'll.
I guess the only other thing is her PFT's. They have been increasing slowly, very slowly. I'm hoping she will get back to full lung function but the doctors can't promise anything. At this point she is back to being short of breath if she walks around too much. Yesterday while she was cleaning Tweaks cage she said she felt short of breath but checked her sats and was at 99%. So at least she is getting enough oxygen. I'll continue to update the blog as she completes her follow up treatments and appointments to keep everyone posted on how her numbers improve.
Thanks again for all the prayers!