Wednesday, June 18, 2014

Fighting the virus day two

I stole the picture above from Maddy's Facebook. They stick her in a tent with a big blower/filter unit while she breathes the ribavirin. Have I mentioned yet the medicine they are making her breathe for two hours at a time every 8 hours is so toxic that if you have contacts in while it's being used the droplets of this stuff in the air will fuse the contacts to your eyeball?!?! Yeah, there is that!

Anyway, Maddy is handling it like a pro as usual. She is super tired because they wanted to start her in this med as quickly as possible so her first dose was at 2AM. So her schedule is 2AM, 10AM, 6PM. And it starts all over again. Each treatment takes 2 hours, plus 15 min or so of set up and year down of the tent, so that's about 7 hours of that treatment each day. Then she has to deal with all the in and out traffic of nurses and doctors. I think she got a two hour nap or so this afternoon. It's a little after 9pm now, hopefully she will be able to get a little sleep between now and the next ribavirin at 2.

I came out a little after 6 when they kicked Patrick out for her ribavirin and took him out to Pannera for dinner. Then we did a little grocery shopping for Maddy. We are lucky because her room already had a fridge when we got here. So she is stocked up a little bit with juice and snacks now. The doc said the only plan right now is to do the ribavirin and go home. Hopefully that means she will be out Saturday or so. She is going to chat with him tomorrow about getting that IVIG treatment she couldn't get at the beginning of the month because her insurance was being weird. It will be good if they can get that out of the way while she is stuck here anyway.

Thanks for all the prayers. I will probably not update again for a while unless something weird happens so don't worry if you don't see anything.

 

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