Some sorta answers.

It's been a long night! But Maddy has getting back to her normal self. I think when I left off in the last post Maddy was finally sleeping after being given a dose of Haldol. We got up to the room around 10:30 and when the nurse didi her assessment Maddy knew where she was and why she was here. I almost fainted from relief but didn't want to count my chickens too soon. We got Maddy settled in and back to sleep by 11. Then the parade of wake up events began! It went like this...

• Midnight - wake up and take oral medication she missed due to being in ER.
  
• 1AM - wake up when nurse comes in to hang another IV antibiotic.
  
• 1:50 - wake up when IV pump alarm goes off because Maddy bent her arm!
  
• 2:00 - wake up when nurse comes in to switch antibiotic.
  
• 3:00 - wake up when alarm goes off to alert the nurse the infusion is complete. Page nurse. Just as we drift into sleep nurse comes in to disconnect antibiotic.
  
• 4:00 - wake up to take Maddy's vitals.
  
• 4:15 - wake up to take Maddy's blood.
  
• 5:00 - wake up to give Maddy her prograf and hang another IV antibiotic.
  
• 5:50 - alarm goes off, antibiotic is finished. Sike! Still anothe 50ml to pump in, reset infusion.
  
• 6:00 - oh wait, now they give Maddy her prograf. And take down the IV.
  
• 7:00 - shift change, "hello I'll be your nurse today. I will be right back with your meds and to assess you".
  
• 8:00 - nurse brings Maddy's morning oral meds and does assessment. Doctor comes in as this is being done. By 9 they are all finished.
  

Needless to say we didn't get much rest. I talked the nurse into giving her three hours of uninterrupted sleep. We put a do not disturb sign on the door and her nurse, Elisha, said she would push back any medications until then so Maddy can rest. Now on to the "sorta answers".

Dr. Floreth is the doc on this morning, which is great because he is the nicest and that's when Maddy needs right now. He said we are still looking into meningitis but those cultures can take quite a while to come back. He is also considering the side effects of the drugs she is on. Many of which can be dementia and confusion to say the least. He's particularly concerned about the meds they put her on for the concussion reacting with the anti anxiety and antidepressant meds she is on. He said the high dose of steroids she needed after the concussion can trigger adverse effects from those psychotropic drugs. So he is going to wipe her clean and call in the psychologist and the neurologists to reassess her medications and dosages so we can try to get the balance right again. He said he has seen this type of reaction before when someone has been on their normal drug regiment and something new happens, the new drugs put everything else out of whack. Also now that Maddy is more herself again she was able to tell us she has only been getting about 3 hours of sleep a night. Which is not good for anyone much less someone on such a precariously balanced regiment of anti rejection and other drugs.

So as I am won't to do, I just used 600 words to say what I could have said in one sentence. Maddy is feeling more like herself and they are resetting her medications in the hopes of getting everything back in balance. Oh yeah, two sentences. They are still looking into the possibility it's meningitis.

That's all for now.

Posted with Blogsy