Thursday, August 1, 2013

Day 17, Final Chemo

To say that Maddy is worn out would be an understatement! But the final round of pheresis and chemo are finished and we think she is in the home stretch. She was told by the doctor that she could go home at the end of this round of treatment and was hoping to leave today, but alas she forgot he mentioned one more round of IVIG which is not until tomorrow. So, don't want to jinx it but we should get out of here tomorrow.

As for today, Maddy was feeling pretty crappy for most of it. She can't seem to eat at all without feeling like she is going to vomit. Just taking a sip of water had her heaving for a few hours. And she has been getting killer headaches. She has been taking strong pain killers to combat them but I'm sure that is just adding to the problems. She is not sure if all this is from the chemo and all the treatments she has had to endure. The heaving session was hours before she got her final dose of chemo so we can't blame it on today's round. She is worried that she has developed C-diff, which is an intestinal infection, commonly linked to long courses of oral antibiotics. In normal people you know you are getting it because you develop diarrhea. However, both my kids present with the inability to keep anything down instead. We are so backward. This is the intestinal infection Ethan almost died from when he was six and Maddy has had a few times and the doctors never believed her because it didn't present with the common symptoms. So we are always on the look out for this pesky little bugger. It's very easy to treat with an oral medication and usually clears up within a few days. Hopefully they will just go ahead and treat her just in case. I don't think it can hurt at this point!

I guess that's it for now. Hopefully I will be posting a final update for this visit tomorrow from home. Please pray for that. Maddy is tired and wants to be home! Oh, and so do I!

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