So here is the rundown so far. Maddy has pneumonia and tested positive for flu. That means the flu triggered the pneumonia. Because it's a viral infection antibiotics are not much use. So no IV antibiotics at this point. They are treating her with tamiflu and will also start ribavirin as well. In case you don't remember what that is its basically an inhaled antiviral treatment that melts your contacts to your eyeballs if you have them. Here is the blog from last time she was on it.
Today has been pretty stupid. We were still stuck in limbo until about 6PM. After finally getting into a real room they realized Maddy was late getting her prograf. Now this is a big problem because of the diatary restrictions they have on this medication. You can't eat anything for one hour before taking the pills and can't eat again until two hours after taking them. That's a three hour window twice a day where Maddy can not eat. Normally in the hospital they give it to her at 5AM and 5PM. Which is a pain because that means she can't eat until 7. And the food usually comes around 5:30 or six. So tonight they are an hour late which means Maddy can't have dinner until 8PM. Top that off with a stupid nurse who can't understand what's going on and so telling people Maddy doesn't want to eat! Wtf?!?! Of course she wants to eat! She just isn't allowed to unless she doesn't want her anti rejection medication to not work! So now the respiratory people are trying to start the ribavirin, which takes two hours and no one can be near her while that's going, and she has to sit in a little 2X2 tent with a big ventilator blowing on her the whole time. And the resp tech is asking Maddy why she doesn't want to eat? All this is of course going down the minute I step downstairs to get my stuff out of the car and Maddy has no voice from her throat being so messed up from the flu so she's having trouble getting the message to the tech that she indeed does want to eat. And sleep sometime tonight for that matter so they better get this scheduling shit figured out or somebody is going to have a cow! That somebody is both Maddy and I.
Ok, rant over. I will stop writing in run on sentences now. Anyway, I am currently waiting for the respiratory people to come back so I can tell them to bug off until after Maddy eats her dinner. Hopefully they got the clue and won't be back until later. But not too much later or Maddy won't get any sleep tonight. I think it will make the most sense for me to go home tonight when they start the ribavirin and just come back in the morning since they are going to kick me out anyway. Hopefully Maddy will be ok. Guess I'll update again tomorrow.
Posted with Blogsy
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