Getting Sprung!

This is how I look during Maddy's ribavirin treatment. At least I'm not in the tent!

 

This is the last treatment she has to do then we get to go home. As usual Maddy didn't get to sleep last night so she has been sleeping most of the day. By most of the day I'm mean she started to take a nap around 10AM and has been getting some shuteye between people coming in to bug her for the last 4 hours. This morning when the doctor came in he said she looked like she was feeling better. She even got her voice back so he was happy with that. She has been coughing up that slime from her lungs really hard for about the last 20 hours or so. Dr. Haddad said her lungs are sounding much more clear already. Like I mentioned before the virus killed off the lining of her lungs and she will be coughing that up for the next few days. Then her lungs will grow a new lining. Maddy said it feels like she has CF lungs again. Not a fun experience. But it will pass. So far we don't think there has been any new perminant damage to her lungs. Her PFT numbers on her little mobile maching are about the same as they have been at home so that's good news. At 30% lung function she does not have a percentage point to spare!

So this last treatment should be over by 4ish. Then discharge paperwork and we head home. I don't want to count any chickens too soon but I'm pretty sure we will be home tonight. Maddy should be feeling much better in the next few days if things progress the same way they did last time she went through this kind of treatment. Thanks again for all the prayers. I will only update again if something changes.

Posted with Blogsy