We are sitting in the doctors office waiting for Maddy's bed to be ready. We got here at 9AM for her regular clinic visit. They accessed Maddy's port without any problems and were able to get her blood work drawn from that. Which made Maddy very happy! She met with the transplant team and did her breathing treatments and PFT's already. She is up to 45% lung function, up three points from last week! They say those numbers will continue to improve over time. Maddy has no problems breathing at all. She even walked five miles they other day while visiting friends and didn't have to stop and catch her breath.
The doctor said the surgery should be quick and easy. That is exactly what we will be praying for! We are going to run downstairs and grab lunch while we wait for a room. I'll post more later.
Oh yeah, I'm testing a new blogger app for my iPad and I hope it works.
Update:
We finally got into a room at around 5:00 and boy are we frustrated! I guess it's better than coming in tomorrow at 5AM, waiting three hours or so to go back for surgery and then having to spend most of the day after her surgery in a recovery room while we wait for a bed. This way she has a room to come back to right after surgery tomorrow. Hopefully it will go well and she will be up and moving quickly afterward. The doctor said as long as she is not vomiting, can walk around and can poop she can go home right away. Non transplant patients who get this surgery usually go home the same day.
That's all for tonight. I'll update again after the surgery!
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